Asking Questions and Giving Feedback

This post is sponsored by Op4G, the research partner that lets you use your opinion for good. They’ve established a research community for people with diabetes to have a voice in future diabetes treatment developments, make a little extra cash and support nonprofit organizations. Sign up to be part of the community.

You know how whenever your computer is acting up, the moment the IT guy comes to take a look at it, it starts working perfectly?

That’s kind of what it feels like when I go to the doctor. I know everything that’s going on, specifically what’s going wrong, and when I get into the appointment, it seems to fly right out of my head. Which is why the best thing I’ve done for my appointments is keep a running list of questions and thoughts on my phone to discuss at the appointment.

Asking questions and providing feedback are two critical parts of being an engaged patient. Continue reading

Ways to Get Involved in Research

This post is sponsored by Op4G, the research partner that lets you use your opinion for good. They’ve established a research community for people with diabetes to have a voice in future diabetes treatment developments, make a little extra cash and support nonprofit organizations. Sign up to be part of the community.

When you live with a chronic medical condition like type 1 diabetes, it’s easy to give up on the idea of ever being cured. But science continues to progress so there’s hope. If not for a cure, then at least for better treatment.

That progression is due to research… which requires patients like us. There are a variety of ways to be involved in research for cures and treatment. Here are five that you could consider: Continue reading

A Case of Mistaken Identity: Drug Addict or PWD?

There’s a heroin epidemic in my home state. Drug addiction is a sad and serious problem in our country that is getting a lot of media attention. This crisis has had an unexpected impact on people who live with diabetes.

via Type 1 Diabetes Memes

Because after insulin, laughter can be the best medicine, those of us with diabetes make jokes about it, specifically type 1s like me who have to inject either regularly or occasionally. We joke about being high, we joke about shooting up to keep from getting high and we joke about being insulin addicts. All of which are true but out of context could sound bad.

However some of the actual realities of this disease have lead to mistaken identity in some cases.

Three things happened in the course of one week over the summer that prompted me to write this post.

Needles on the Playground Continue reading

Perseverance

I can’t do this anymore.

Stella celebrated my diaversary with a nap

I think this at least 5 times during the average day. Sometimes it’s traffic, client problems or other daily hassles that bring it on. But most of the time, it’s diabetes that makes me think this.

I think to myself some variation of, “I can’t do this anymore.” And then, I keep on. This is perseverance – Grit, resolution, pluck.

Last Friday was my sixth diaversary, instead of talking about diabetes, I chose to post about my new dog. Because dogs are more pleasant. Continue reading

Supporting Cure Research for More than T1D

I’ve talked about why I personally participate in medical research before. As a person with type 1 diabetes, I feel that I have the obligation to do what I can do to move toward a world without T1D as well as help those who are more scientifically inclined than I am to improve quality of life and treatment options for this disease.

I support research, beyond what I’m doing personally. Which is why I got involved with CureClick, which helps studies recruit participants.

You’ll notice a new box on the sidebar of my blog (at the bottom if you’re viewing on a mobile device). You can find studies related to your medical situation and see if you qualify to participate. Most of these studies provide so
me form of compensation.

Periodically, I’ll promote different studies on my social media channels as well as here to help them find the people that they need. Here are just a few studies that are currently recruiting:

Type 2 Diabetes Management Study is seeking people who live with type 2 diabetes, ages 18-75 to participate in an online only study. Find out more here: http://curec.lk/2bRD16p

Chronic Lymphocytic Leukemia (CLL) clinical trial is currently recruiting participants to test the effectiveness of the chemotherapy drug chlorambucil. Learn more here: http://curec.lk/2cgX8Ky

Hypertension virtual trial is recruiting people 18+ who live with hypertension for a study that requires blood pressure readings. Read more here: http://curec.lk/2c4UI4b

Migraine relief trial is recruiting people 18-75 who suffer from from frequent migraines. See if you qualify http://curec.lk/2c4UI4b

There are a variety of types of research opportunities available, some that are simply survey based, use an app, want to track your data or actually test a treatment. I’d encourage you to be as involved in relevant medical research as you feel comfortable with.