When People Take Solace in My Illness

I feel like I’m in a perpetual state of conflict over the perception of my life with type 1 diabetes.

Because I choose to not hide my diabetes, I found myself at a party with my Dexcom sensor fully visible on my arm, talking to a friend’s husband. He was asking me the questions that I’m used to answering. The ones I get on a regular basis from family, friends, acquaintances and strangers. The questions were about what my equipment does, what I can and can’t eat, etc.

Then came the familiar one, “So as long as you do what you’re supposed to, it’s not a big deal. Right?” Continue reading

Pumpkins And Wine {Fall Craft}

What do you do when you have a whole pile of wine corks?

You invited your friend over and make some pumpkins.

It actually all started when my sister shared this photo from My Gourmet Connection to my Facebook page.

My friend Brooke and I tried making our own pumpkins.

First, you gather your supplies: Continue reading

Supporting Cure Research for More than T1D

I’ve talked about why I personally participate in medical research before. As a person with type 1 diabetes, I feel that I have the obligation to do what I can do to move toward a world without T1D as well as help those who are more scientifically inclined than I am to improve quality of life and treatment options for this disease.

I support research, beyond what I’m doing personally. Which is why I got involved with CureClick, which helps studies recruit participants.

You’ll notice a new box on the sidebar of my blog (at the bottom if you’re viewing on a mobile device). You can find studies related to your medical situation and see if you qualify to participate. Most of these studies provide so
me form of compensation.

Periodically, I’ll promote different studies on my social media channels as well as here to help them find the people that they need. Here are just a few studies that are currently recruiting:

Type 2 Diabetes Management Study is seeking people who live with type 2 diabetes, ages 18-75 to participate in an online only study. Find out more here: http://curec.lk/2bRD16p

Chronic Lymphocytic Leukemia (CLL) clinical trial is currently recruiting participants to test the effectiveness of the chemotherapy drug chlorambucil. Learn more here: http://curec.lk/2cgX8Ky

Hypertension virtual trial is recruiting people 18+ who live with hypertension for a study that requires blood pressure readings. Read more here: http://curec.lk/2c4UI4b

Migraine relief trial is recruiting people 18-75 who suffer from from frequent migraines. See if you qualify http://curec.lk/2c4UI4b

There are a variety of types of research opportunities available, some that are simply survey based, use an app, want to track your data or actually test a treatment. I’d encourage you to be as involved in relevant medical research as you feel comfortable with.

A Visit to Sam’s House

I’ve found myself on the road or in the air a lot lately, hence my absence.

My work brought me to Connecticut recently, to the fascinating city of Hartford. The Glimore Girls fan in me secretly hoped to drive past a place near enough that it could be Richard and Emily’s. Unfortunately, we didn’t have time to go by Yale.

However, we found ourselves with a couple of hours before we needed to be at the airport to head home. (We being my boss and I.) A sign on the highway answered the question, “How can we spend our extra time in Hartford?”

The Mark Twain House.

The attendant at the desk when we bought tickets for our tour asked how we heard about the house after marveling at Ohio driver’s licenses. When we told him the highway sign, he was silent a moment before nodding and remarking, “Glad to see old school advertising still works.”

“Wrinkles should merely indicate where smiles have been.”

Mark Twain’s, rather Samuel Clemens’, house can only be viewed by guided tours. When we gathered with our tour group, the guide started talking and we were alerted that the fire alarm in the house was going off and we had to wait on the fire department.

“Great,” I thought. “We’re visiting on the day that Mark Twain’s house burns down.” Continue reading

What I’m Thinking After Five Years with Type 1 Diabetes

Today is my 5th diaversary.

In May, I was invited to be part of an adults with type 1 diabetes panel at a local JDRF event. I wasn’t the youngest person on the panel, but I’d had type 1 the shortest amount of time as I was the only one diagnosed as an adult. I was asked to share about the adjustment to life with type 1 as an adult, so I gave my abbreviated diagnosis story.

I talked about the time five years ago as a recent college grad and new wife. I listed out the symptoms I was experiencing: unquenchable thirst, peeing all the time, tired, blurry vision, weight loss, vomiting… “My husband finally convinced me to go to the doctor,” I told the audience. “And they gave me a pregnancy test.” The audience had a visible physical reaction to that statement. Everyone present knew those symptoms, knew what they meant and expected me to say that when I went to the doctor they diagnosed me with diabetes right away, the pregnancy test was a surprise to them.

As I sit here in the middle of my season of 5th year milestones, I have trouble believing that five whole years have passed. And in the next minute, it’s hard to believe that only five years have passed because it feels like a life time. There’s a lot that I’m thinking about on my 5th diaversary. Continue reading