The High Cost of Care

Welcome to Day 2 of Diabetes Blog Week.

Insulin and other diabetes medications and supplies can be costly.  Here in the US, insurance status and age (as in Medicare eligibility) can impact both the cost and coverage.  So today, let’s discuss how cost impacts our diabetes care.  Do you have advice to share?  For those outside the US, is cost a concern?  Are there other factors such as accessibility or education that cause barriers to your diabetes care?

As I thought about this post, I felt the urge to start with a disclaimer or an apology. But I’ll start with thankfulness. I may complain about having been forced into an insulin that doesn’t work as well for me or having to wait on hold to get a real person to talk to about my supplies, my medicine or my next appointment. But at the end of the day, I’m very lucky when it comes to diabetes costs.

And I don’t use “lucky” in a flippant manner. I generally refuse to refer to myself as being lucky, blessed (or in some other way gifted what I need) to be where I am in my life when it comes to career, home and relationship. I work hard and make choices to get to where I am. But when it comes to the access to what I need to not only stay alive but be healthy, I’m really lucky. I have insurance, I have an HSA, I have the means to pay my high deductible and I have the best medical care in the world right in my back yard. That, my friends, feels a lot like luck.

High Monetary Cost Continue reading

Diabetes is the definition of insanity

It’s officially Diabetes Blog Week! I’m looking forward to contributing to the conversation as many days this week as possible. Today’s prompt is:

Diabetes can sometimes seem to play by a rulebook that makes no sense, tossing out unexpected challenges at random.  What are your best tips for being prepared when the unexpected happens?  Or, take this topic another way and tell us about some good things diabetes has brought into your, or your loved one’s, life that you never could have expected?

Albert Einstein is credited with saying that insanity is doing the same thing over and over again and expecting different results. The whole concept of doing to the same thing over and getting different results sounds more than a little like life with type 1 diabetes. I can do the exact same things each day, at the exact same time and eat exactly the same foods, taking exactly the same amount of insulin and my numbers will never be the same.

Type 1 diabetes = insanity. I do the same thing over and over and have to expect a different result otherwise I will literally go insane. This disease is maddening, especially if you’re like me and have a healthy appreciation for order. These past five years I’ve learned some tough lessons in flexibility, discipline and taking deep breaths.

I’d like to hit both points in the prompt and give you the best return on your time for reading my first DBlog Week post. Continue reading

The mental side of diabetes

Today’s Diabetes Blog Week prompt is:

We think a lot about the physical component of diabetes, but the mental component is just as significant. How does diabetes affect you or your loved one mentally or emotionally? How have you learned to deal with the mental aspect of the condition? Any tips, positive phrases, mantras, or ideas to share on getting out of a diabetes funk?

When people see my life with type 1 diabetes, the then to fixate on the food, the needles, the gadgets and overall physical aspects of my life with diabetes and assume that is all there is. “Just do X and you’ll be fine, right?” I’ve been asked.

I can do everything that I need to do the be physically “fine” but that doesn’t necessarily make me fine. I’m approaching my 5th year with diabetes (my diabetes is younger that #DBlogWeek!) and I can tell you that there’s a whole lot more to being fine with this disease than meets the eye. Continue reading

Wildcard: Crazy Stories {#DBlogWeek}

I’ve decided not to clean anything out, closet or otherwise, today. So I’m going with the wildcard prompt on crazy stories (in part due to laziness). Here’s the prompt:

Diabetes can sure bring some crazy moments. So tell us your Top 3 craziest D related stories! If you can’t think of three, don’t worry. We’re just as happy with one or two . . . Credit to Maria M of My Life: A Long Trip with T1D for this topic.

I’ve had more than three crazy moments living with diabetes over the past 4ish years. Here are a few of my favorites:

  1. 10 things my diabetes devices have been confused with. I started keeping a list, the craziest thing my OmniPod has been confused with was a tracking device, as asked by a TSA agent in the Atlanta airport. The most awkward was when a kid asked if my OmniPod was to keep me from having babies. The other 8 are reasonably funny too.
  2. The insurance woman who thought I had a daughter, because apparently grown ups can’t have type 1 diabetes. This misconception is part of why I’m so vocal about my adult diagnosis story.
  3. A woman found my OmniPod and helped me find walnuts. This is by far my favorite grocery store encounter! I was thrilled to be in the right place, at the right time, with the right D-device stuck to my arm to help a fellow person with type 1 feel more confident with their insulin pump choices.
  4. My World Diabetes Day airport encounter. I meet people in airports and on planes. It’s great, I just never thought a TSA agent would want to be volunteered to pat me down. That D-mom and I both left the security check point feeling less alone.

Check out the Diabetes Blog Week page to read posts about cleaning things out (metaphorically or literally) and to see some other crazy stories.

 

I’m open about diabetes…until I’m not (Dblog Week)

#DBlogWeek Post Number 2… can do pretty much anything even though I have diabetes and most of the time I talk about it. But there are somethings that I don’t share. Which brings me to today’s Diabetes Blog Week Topic, proposed by Scott, on the topics and aspects of diabetes that we keep to ourselves.

I’m so open about living with type 1 diabetes that I had to stop and really think about the things that I keep to myself.

There are a few things, but I think the more interesting conversation today is less of what I keep to myself and more why I keep it to myself. Continue reading