It’s officially Diabetes Blog Week! I’m looking forward to contributing to the conversation as many days this week as possible. Today’s prompt is:
Diabetes can sometimes seem to play by a rulebook that makes no sense, tossing out unexpected challenges at random. What are your best tips for being prepared when the unexpected happens? Or, take this topic another way and tell us about some good things diabetes has brought into your, or your loved one’s, life that you never could have expected?
Albert Einstein is credited with saying that insanity is doing the same thing over and over again and expecting different results. The whole concept of doing to the same thing over and getting different results sounds more than a little like life with type 1 diabetes. I can do the exact same things each day, at the exact same time and eat exactly the same foods, taking exactly the same amount of insulin and my numbers will never be the same.
Type 1 diabetes = insanity. I do the same thing over and over and have to expect a different result otherwise I will literally go insane. This disease is maddening, especially if you’re like me and have a healthy appreciation for order. These past five years I’ve learned some tough lessons in flexibility, discipline and taking deep breaths.
I’d like to hit both points in the prompt and give you the best return on your time for reading my first DBlog Week post. Continue reading →
Hello dear readers, I’m back from vacation! I’ll share pictures soon.
Over the weekend I had the opportunity to attend my local JDRF Type One Nation Summit. It’s the first time I’ve been able to go to one and I’m so glad that I did. About a week before the summit, I got an email from my local Dexcom rep asking if I’d be willing to participate on a panel of Super Stars with T1D, which was a huge honor.
The day started with a research update from Kady Helme of JDRF. She talked about the artificial pancreas study that she’s a part of, Beta cell replacement and other research efforts that the JDRF supports. The current research gives me hope for improved treatment options for type 1 diabetes. Continue reading →
TRUE2Go, from Rite Aid, saved my bacon this Easter. We had an early Saturday morning making, so we packed up what we thought we’d need for the next 36-ish hours on Friday night. For me that included two extra pods, even though I expected to be home by pod change time on Sunday.
Whenever you pack for even one night away from home, never trust your memory on the number of test strips that you have in your purse. If you’re anything like me, you’ll be wrong.
On Saturday when I went to test and bolus for lunch, I realized that I had four strips in my vial. I check my blood sugar 8-10 times a day and holidays or eating out can really screw me up causing me to test more often. Four strips were not going to last me through the next day. Continue reading →
“Do you need to bolus for this?” Brad whispered in my ear as the communion plates were passed down the pew.
It was my first Easter with type 1 diabetes and I was still pretty new to OmniPod. Easter fell on an arm-pod day so I threw on a cardigan to cover the pod (not something I would worry about now) for the Easter Sunday service at my husband’s family church.
I was so conscious of the pod on my arm. So aware of the lump in my sweater sleeve, concerned about the clack that it made when I bumped it on the pew. When communion came around, I chose not to bolus. The decision was made primarily due to what I believe would be disruptive beeping from my pod and partly because I had no idea how many carbs were in the symbolic body and blood of Christ.
Now, I truly don’t care if I beep during church. Don’t mind if people see my pump, I might even match it to my dress like last year. I will bolus for communion if I feel I need to. But honestly, some of the religious rituals that we observe are made more complicated due to living with a medical condition, such as diabetes or Celiac disease. (Typically communion wafers or bread are not gluten free.)
I still fear a pod failing in church and emitting the ear-piercing screech during the quiet moments of spiritual reflection. I worry that my Dexcom will alert during prayer. I don’t want my medical problems to impact the worship of others, but I also need to care for the body I’ve been given and care less about the judgement from others (i.e. the concern that people think I’m texting when I’m really bolusing).
At the end of the day, God knows better than I even do what’s going on in my body and what my needs are, so regardless of whether everyone else understands, He does.
Most of the time, I struggle to pre-bolus for lunch appropriately and end up frustrated because the insulin takes so long to act. The other day, my body served up an unpleasant surprise and a new symptom.
I bolus for lunch 20-30 minutes before I want to eat usually. I took insulin for my lunch and went back to finish the project I’d been working on. Less than 10 minutes later, my arms felt weak and I felt a slight tremble in my stomach muscles.
“I must be dropping,” I thought and checked my Dexcom. It showed 78 with a diagonal arrow down. “Guess I should eat now.”
As I pushed my chair back from my desk, I realized that I couldn’t hear anything but a low-pitched buzzing sound. My music was still playing, but that buzz was not only a sound but a feeling in my head. Then my Dexcom joined in with it’s different tone buzz, sharing double down arrows.
I felt like there was a bubble around my head as I went to go reheat my leftover chili. I didn’t want to wait for the real food to kick in so I popped a piece of candy and had to lean on the table while my food warmed in the microwave.