Insulin and other diabetes medications and supplies can be costly. Here in the US, insurance status and age (as in Medicare eligibility) can impact both the cost and coverage. So today, let’s discuss how cost impacts our diabetes care. Do you have advice to share? For those outside the US, is cost a concern? Are there other factors such as accessibility or education that cause barriers to your diabetes care?
As I thought about this post, I felt the urge to start with a disclaimer or an apology. But I’ll start with thankfulness. I may complain about having been forced into an insulin that doesn’t work as well for me or having to wait on hold to get a real person to talk to about my supplies, my medicine or my next appointment. But at the end of the day, I’m very lucky when it comes to diabetes costs.
And I don’t use “lucky” in a flippant manner. I generally refuse to refer to myself as being lucky, blessed (or in some other way gifted what I need) to be where I am in my life when it comes to career, home and relationship. I work hard and make choices to get to where I am. But when it comes to the access to what I need to not only stay alive but be healthy, I’m really lucky. I have insurance, I have an HSA, I have the means to pay my high deductible and I have the best medical care in the world right in my back yard. That, my friends, feels a lot like luck.
It’s officially Diabetes Blog Week! I’m looking forward to contributing to the conversation as many days this week as possible. Today’s prompt is:
Diabetes can sometimes seem to play by a rulebook that makes no sense, tossing out unexpected challenges at random. What are your best tips for being prepared when the unexpected happens? Or, take this topic another way and tell us about some good things diabetes has brought into your, or your loved one’s, life that you never could have expected?
Albert Einstein is credited with saying that insanity is doing the same thing over and over again and expecting different results. The whole concept of doing to the same thing over and getting different results sounds more than a little like life with type 1 diabetes. I can do the exact same things each day, at the exact same time and eat exactly the same foods, taking exactly the same amount of insulin and my numbers will never be the same.
Type 1 diabetes = insanity. I do the same thing over and over and have to expect a different result otherwise I will literally go insane. This disease is maddening, especially if you’re like me and have a healthy appreciation for order. These past five years I’ve learned some tough lessons in flexibility, discipline and taking deep breaths.
I’d like to hit both points in the prompt and give you the best return on your time for reading my first DBlog Week post. Continue reading →
Not nearly enough women’s clothing is made with pockets. I’m tempted to purchase any dress or skirt that I try on if it has pockets… even if it doesn’t look that great on me.
“But women carry purses, they don’t need pockets in their clothing.”
False! There are plenty of times when carrying a purse with you doesn’t make sense or isn’t permitted. The struggle is real.
So what do you do with the bare necessities that you must carry? You improvise! Remember the time I created a utility garter for my diabetes supplies while I carried out Matron of Honor duties?
I’ve long thought about adding pockets to some of my favorite dresses but never got around to it until last week. Last Friday, I volunteered at my local JDRF chapter’s annual gala fundraiser. I worked on auction check in/out and entered donations and couldn’t really have my purse with me. They requested that volunteers dress in black, so I went to my closet and pulled out my favorite black skater dress. You may remember it from my blog post about our 5th wedding anniversary.
Zero pockets to be found
One problem, there’s nowhere to stash my phone so I can track my blood sugar. I thought about the garter, but it would need adjustments to fit a phone securely and it might be awkward to dig under my dress for it at this kind of event. So I decided to add pockets. Continue reading →
I’m wearing blue today, as I do many Fridays during the year. People must really think that I like the color blue. While I do like blue, the color means a bit more to me.
November is Diabetes Awareness Month… it’s a global awareness month. November isn’t really a month for people with diabetes, because we’re well aware of the realities of this disease each and every day.
November is for you, dear friend without diabetes. It’s a month specially set aside for you to be aware of diabetes. To learn about the realities people like me face every day. To learn the truths about the different types of diabetes. To change your mind, your language and your attitude about the word “diabetes.”
The two most prominent diabetes organizations are working hard this month to help spread awareness and enable advocates.
So my diabetes gadgets were Out of Warranty and I had planned to keep it that way as I wait for better technology. Hope draws closer as people are actually being enrolled in the first tubeless artificial pancreas trials (wish one of the clinics were here in Cleveland!). But I’m halfway back under a warranty.
My Dexcom gave the dreaded, “transmitter battery low, reorder soon” message. So I called my medical supply company. After a slightly frustrating conversation where I had to repeat myself four times and spell the word “low” the lady said she’d get the paperwork in for me to get a new Dexcom G4 system. “Since I’m getting a whole new system, let’s put in paperwork for the Dexcom G5 please.” (Because who wants new-old technology?)
She put in the order and I anticipated full transmitter battery death was imminent and prepared to fly blind for a week or so without my CGM. Thankfully, that didn’t happen.