Asking Questions and Giving Feedback

This post is sponsored by Op4G, the research partner that lets you use your opinion for good. They’ve established a research community for people with diabetes to have a voice in future diabetes treatment developments, make a little extra cash and support nonprofit organizations. Sign up to be part of the community.

You know how whenever your computer is acting up, the moment the IT guy comes to take a look at it, it starts working perfectly?

That’s kind of what it feels like when I go to the doctor. I know everything that’s going on, specifically what’s going wrong, and when I get into the appointment, it seems to fly right out of my head. Which is why the best thing I’ve done for my appointments is keep a running list of questions and thoughts on my phone to discuss at the appointment.

Asking questions and providing feedback are two critical parts of being an engaged patient. Continue reading

Ways to Get Involved in Research

This post is sponsored by Op4G, the research partner that lets you use your opinion for good. They’ve established a research community for people with diabetes to have a voice in future diabetes treatment developments, make a little extra cash and support nonprofit organizations. Sign up to be part of the community.

When you live with a chronic medical condition like type 1 diabetes, it’s easy to give up on the idea of ever being cured. But science continues to progress so there’s hope. If not for a cure, then at least for better treatment.

That progression is due to research… which requires patients like us. There are a variety of ways to be involved in research for cures and treatment. Here are five that you could consider: Continue reading

Incognito Diabetes

I worked at my last job for nearly 7 years. I started in July of 2011 and was diagnosed with type 1 diabetes the next month. So everyone knew that the new girl had diabetes. It was just normal and I didn’t have to think twice about things, everyone just accepted it.

On top of all of the things related to starting a new job – adjusting to a new commute, working in a new office, getting to know new colleagues and learning about a whole new industry – I had to make a few decisions about diabetes. I decided that being the new girl was enough to deal with that I wasn’t going to put it out there right away to my new coworkers.

It’s not a secret, if you Google my name, this site comes up, along with my Twitter feed and some of my work with DiabetesMine. I’m not going to great lengths to hide it, but I’m also not broadcasting it. Continue reading

Only In Your (Weird Diabetes) Dreams

I have a history of very vivid and weird dreams. I’ve heard of others with diabetes having strange diabetes dreams and even stranger dreams when a low blood sugar is involved. In more than 6 years with type 1 diabetes, I hadn’t experienced a diabetes dream… until the other night.

I woke around 2:00 a.m. to my Dexcom alarming low, so I checked my blood sugar and it was 66 mg/dL. A little low, so I treated with a marshmallow from the bag on my nightstand (don’t judge what you don’t understand) and ended up slipping back into sleep. I can’t remember everything about the dream I had next, but here’s what I do remember… Continue reading

A Case of Mistaken Identity: Drug Addict or PWD?

There’s a heroin epidemic in my home state. Drug addiction is a sad and serious problem in our country that is getting a lot of media attention. This crisis has had an unexpected impact on people who live with diabetes.

via Type 1 Diabetes Memes

Because after insulin, laughter can be the best medicine, those of us with diabetes make jokes about it, specifically type 1s like me who have to inject either regularly or occasionally. We joke about being high, we joke about shooting up to keep from getting high and we joke about being insulin addicts. All of which are true but out of context could sound bad.

However some of the actual realities of this disease have lead to mistaken identity in some cases.

Three things happened in the course of one week over the summer that prompted me to write this post.

Needles on the Playground Continue reading