I’m sick

I live with a chronic illness, which to some people means that I’m “sick” all the time. Personally, I don’t view my diabetes as a sickness.

However, I AM sick.

Sick of:

  • Living my life by numbers
  • Having to explain the mechanics of diabetes over and over
  • People thinking that my illness prevents me from doing great things
  • People thinking that my illness prevents me from doing normal things
  • People thinking that my illness gets me special treatment
  • People saying “you can’t eat that”
  • People asking what’s beeping or whose phone is that when an alarm or alert sounds
  • Having alarms and alerts sound all. the. time.
  • Sticking needles into my body

Continue reading

Diabetes Has Terrible Timing

I was going to title this blog post simply: UGH!!!!!!!!!!!!!!!!!!!!!!!!!!! But that wouldn’t be very explanatory and would do terrible things to the already weak SEO of my site.

Here’s the story:

I’m in charge of the monthly events for the professional organization whose board I sit on. I was hosting the summer networking event one evening. I was at the bar having just been served the Pub Exclusive: Great Lakes Buckin’ Mule Moscow Mule Ale and I pulled out my PDM to take a bolus for the beer and some food. The screen flashed on and then straight to a PDM error message to call customer service.

I knew the PDM would need reset, but was wondering if I could delay a bolus so I glanced at my Dexcom app on my phone. It was apparently the perfect time for a sensor error.

Let’s recap real quick: I’m running an event, I can’t bolus from my insulin pump, I can’t read my CGM and because of the PDM error I have no glucose meter either.

I excuse myself and dig in my diabetes bag for a syringe to take a bolus from my insulin vial. I find no syringes in my bag and have no idea why. So I go to the quietest place I can find (the event was in the bar of a hotel restaurant) and even then it was loud, but I called OmniPod customer service anyway. I spent 20 minutes of the phone with a sympathetic rep who took the information and tried to walk me through a reset using a “paperclip,” since I didn’t have a paperclip or safety pin or anything, I used my earring. The PDM screen blinked off, it went to the restart screen, blinked off again, restart screen, off, restart, off, restart… rinse repeat. We tried the earring reset again. Same result. We removed the batteries, waited, replaced them, and same result. That’s when the rep pronounced my PDM dead. “Okay, I’ll take shots until tomorrow and they’ll overnight me a new one,” I thought.

“Rachel, our records show that your PDM is out of warranty. We won’t be able to replace it, you’ll need to order a new one.”

I deflated. I had forgotten that I willfully allowed myself to run out of warranty in December in the vain hope that OmniPod would be releasing a closed-loop system. I had attempted to get an OmniPod DASH in order to do a review for DiabetesMine, but I couldn’t get my hands on one. It’s a long story.

“Do you have another form of insulin delivery?” He asked me. To which my automatic response was, “Yes.”

But did I? Continue reading

I Smell Insulin

“Hey, hey, wake up,” Brad whispered, gently shaking me. “Come on, wake up.”

My eyelids felt glued shut and my head was heavy with sleep. It’s gotta be 3 in the morning, why is he waking me up? I finally got one eyelid to open and pulled my face barely out of my pillow and groggily asked, “What?”

“I smell insulin and I know your blood sugar is high,” he said. “Do you need to change your pod?” I swear it took me a good 30 seconds to process this.

Continue reading

Christmas Gifts for People with Diabetes

If you’ve got someone who has diabetes on your Christmas shopping list this year, listen up, this one is for you!

If you’re wondering, “What should I get for my diabetic friend/relative this year?” Allow me to help, instead ask yourself “What should I get for my diabetic friend/relative this year?”

Here’s the thing about people who live with diabetes, the disease is something they live with, I guarantee you it isn’t something that they want or view as a hobby, so it probably isn’t something you should get them gifts for. Most people with diabetes want to be seen as more than their illness, no matter how much they blog, tweet or post about it online. Look at your friend or relative as a person outside of their diabetes with their own unique personality, interests and hobbies that can provide you with plenty of ideas for gift giving.

Of course, if your loved one asks for something diabetes-related, that’s a whole different story. Sometimes they may want treated to a fancy new diabetes bag or medical alert bracelet, and if that’s the case definitely go for it!

Just don’t assume that because a person lives with a disease that they will want gifts for it.

My Phone Pouch – a Solution when You Need a Pocket

Women’s and girls clothes need pockets. Real ones, you know that you can actually put things in. Right now pockets are being touted as special features in some women’s clothing, when in fact they should be standards. Until clothing designers catch up with that need  demand we’re stuck working around the problem by sewing pockets into our dresses, making pocket garters for under dresses, or using a handy invention like MyPhonePouch.

I had the opportunity to connect with Allison, the mother behind the brilliant invention call MyPhonePouch, and learn more about her product as well as give her feedback on ways that it could be used by people with diabetes. Allison gave me my very own pouches to try out – one in each size: small, medium and large.

The Pockets Continue reading